I am super excited to be guest blogging today over at Easter Seals. Please check it out HERE – Easter Seals provides resources and services for both kids and adults with disabilities, and I am proud to be a part of it. Easterseals.com Blog.easterseals.com
Sharing Stories of Parenting the Special Needs Child Around the World
I NEED YOUR HELP and I WANT TO SHARE YOUR STORY Parents, I need your help with an important project, looking at special needs parenting from a global perspective. The purpose and focus of this project will be to address the day to day life of raising a young child with special needs. It…
Please stop learning at my daughter’s expense
The first day of summer or the first day of camp are supposed to be exciting and memorable and calm. But sometimes things don’t work out and it doesn’t go your way or the way you thought it should play out. I get that and I am not an evil, mean Mom waiting to pounce…
Growing Up: Transitions and Disability
I have been sitting through meetings these last few weeks to plan the transition of my daughter to middle school. All is going well, and everyone seems to be on board with the plan. But as I sit there at the big table, I fight back my fears and try to sit tall in my chair and…
Irreverent Disability
Has anyone started reading this book? I just started and I have to say, it is hilarious. Totally and without question, laugh out loud hilarious . And really, what subject is more funny than disability. Zach Anner talks about Cerebral Palsy being “the sexiest of the palsies.” He uses a wheelchair to ambulate, and…
What I Wish I Knew When I Was A Grad Student At University of Chicago, And What I Wish I Could Teach Students Now
I clearly remember every feeling I had when I started Graduate School at University of Chicago (School of Social Service Administration). Mostly a very strong feeling that everyone around me was smarter, had a clearer path, and a better foundation than I did. I was nervous about being “enough” for the the caliber of people…
Wheelchairs In The Snow
There is little I find more lovely than waking up to a beautiful snow. The backyard is covered with a soft white blanket, and the world seems almost more peaceful and quiet. That is until I have to face the ramp in front of the house and worry about how I am going to get…
Since You’ve Been Gone: A Letter to my Mom
Dear Mom, It goes without saying that I miss you so badly my heart hurts, and I cannot believe still to this day (three years later) that when I pick up the phone to call, you will not be there. Some days I can deal pretty well with this, but others I just ache…
Do Special Needs Parents Ever Get A Day Off
I want to take a day off, I really do. I want to sit back on the couch, relax, basically just not get up for awhile. I want to be able to rest and do nothing, and to be ok with that. But for some strange reason I never do, and I actually feel…
The Crazy, Complicated, Upside-Down Feeling of the IEP
Tis’ the season, once again, to face my daughter’s annual IEP. It is one of those meetings you silently dread, while all the time knowing you have to show up and be your best and bring your best game. I rarely have done that. My normal IEP day follows a sleepless night trying to think through…