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The Myth of the Superhero Mom

February 7, 2017 By Patricia O'Machel Leave a Comment

I am super excited to be guest blogging today over at Easter Seals.  Please check it out HERE – Easter Seals provides resources and services for both kids and adults with disabilities, and I am proud to be a part of it. Easterseals.com Blog.easterseals.com

Filed Under: being a Mom, disability, disability parenting, parenting, siblings, special needs mom, Special Needs Parent, special needs parenting, special needs siblings Tagged With: disability parenting, parenting, special needs mom

Sharing Stories of Parenting the Special Needs Child Around the World

October 2, 2016 By Patricia O'Machel Leave a Comment

I NEED YOUR HELP and I WANT TO SHARE YOUR STORY   Parents, I need your help with an important project, looking at special needs parenting from a global perspective. The purpose and focus of this project will be to address the day to day life of raising a young child with special needs.  It…

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Filed Under: being a Mom, diagnosis, disability, disability parenting, Global parenting, siblings, special needs mom, Special Needs Parent, special needs parenting, special needs siblings Tagged With: children disability, disability, globe, parenting, Special needs parenting, world

Please stop learning at my daughter’s expense

June 28, 2016 By Patricia O'Machel 3 Comments

The first day of summer or the first day of camp are supposed to be exciting and memorable and calm. But sometimes things don’t work out and it doesn’t go your way or the way you thought it should play out.  I get that and I am not an evil, mean Mom waiting to pounce…

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Filed Under: disability, disability parenting, special needs mom, Special Needs Parent

Growing Up: Transitions and Disability

April 19, 2016 By Patricia O'Machel Leave a Comment

I have been sitting through meetings these last few weeks to plan the transition of my daughter to middle school.  All is going well, and everyone seems to be on board with the plan.  But as I sit there at the big table, I fight back my fears and try to sit tall in my chair and…

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Filed Under: being a Mom, disability, disability parenting, parenting, special education, special needs mom, Special Needs Parent, special needs parenting Tagged With: cerebral palsy, disability, junior high, middle school, research, transition

Irreverent Disability

April 13, 2016 By Patricia O'Machel Leave a Comment

Has anyone started reading this book?   I just started and I have to say, it is hilarious.  Totally and without question, laugh out loud hilarious .  And really, what subject is more funny than disability. Zach Anner talks about Cerebral Palsy being “the sexiest of the palsies.”  He uses a wheelchair to ambulate, and…

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Filed Under: disability, disability awareness, disability parenting Tagged With: Book, disability, Humor, If At Birth You Don't Succeed

What I Wish I Knew When I Was A Grad Student At University of Chicago, And What I Wish I Could Teach Students Now

March 18, 2016 By Patricia O'Machel Leave a Comment

I clearly remember every feeling I had when I started Graduate School at University of Chicago (School of Social Service Administration). Mostly a very strong feeling that everyone around me was smarter, had a clearer path, and a better foundation than I did. I was nervous about being “enough” for the the caliber of people…

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Filed Under: being a Mom, disability awareness, disability parenting, parenting, Special Needs Parent, special needs parenting Tagged With: SSA, University of Chicago

Wheelchairs In The Snow

March 5, 2016 By Patricia O'Machel Leave a Comment

There is little I find more lovely than waking up to a beautiful snow. The backyard is covered with a soft white blanket, and the world seems almost more peaceful and quiet. That is until I have to face the ramp in front of the house and worry about how I am going to get…

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Filed Under: disability awareness, disability parenting, Special Needs Parent, special needs parenting Tagged With: disability, snow, weather, wheelchair

Since You’ve Been Gone: A Letter to my Mom

March 1, 2016 By Patricia O'Machel Leave a Comment

  Dear Mom, It goes without saying that I miss you so badly my heart hurts, and I cannot believe still to this day (three years later) that when I pick up the phone to call, you will not be there.  Some days I can deal pretty well with this, but others I just ache…

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Filed Under: being a Mom, disability parenting, special needs mom, Special Needs Parent Tagged With: disability, parenting

Do Special Needs Parents Ever Get A Day Off

January 7, 2016 By Patricia O'Machel Leave a Comment

I want to take a day off, I really do.  I want to sit back on the couch, relax, basically just not get up for awhile.  I want to be able to rest and do nothing, and to be ok with that.   But for some strange reason I never do, and I actually feel…

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Filed Under: being a Mom, disability parenting, parenting, special needs parenting Tagged With: day off, parenting, Special needs parenting

The Crazy, Complicated, Upside-Down Feeling of the IEP

November 19, 2015 By Patricia O'Machel Leave a Comment

Tis’ the season, once again, to face my daughter’s annual IEP.  It is one of those meetings you silently dread, while all the time knowing you have to show up and be your best and bring your best game.  I rarely have done that.  My normal IEP day follows a sleepless night trying to think through…

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Filed Under: disability parenting, special education, special needs mom, Special Needs Parent Tagged With: IEP, INdividual Education Plan, School

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Hi, and thanks for stopping by and joining me in this crazy, interesting life of parenting a special child.
Days may be long, but never boring - and I look forward to all of the amazing things that this kind of life, living outside the lines, will bring. More…

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Top Posts

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    Sharing Stories of Parenting the Special Needs Child Around the World
  • Please stop learning at my daughter's expense
    Please stop learning at my daughter's expense
  • I Want My Kids to Think I Matter
    I Want My Kids to Think I Matter

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